Showing posts with label chemotherapy. Show all posts
Showing posts with label chemotherapy. Show all posts

Saturday, April 02, 2022

How to love a bald woman, especially if that woman is yourself

The bald girl flashpoint at this year's Oscars stirred up memories of what it felt like to be a bald girl in the Big Hair Capital of America.

Big hair in Texas gives bees beehive envy. It’s prerequisite for a real estate license, a symbol of potent femininity and sensual largess. If people are willing to sit behind you in a movie theater, you’re just not doing it right. 

I was 32, a working mom living in Houston, when I was diagnosed with non-Hodgkin’s lymphoma, a potentially lethal blood cancer. A few weeks into the aggressive chemo, I wasn’t just bald, I was salamander. No eyebrows. No eyelashes. No, um…etcetera. I’m not sure I still qualified as a mammal. Even if I could have found a wig that didn’t make me look like Betty Rubble, the summer heat in Houston made wigs, hats, and turbans unbearable. 

If I went out with my head uncovered, people called me “sir.” They stared. They snickered. They judged, because it’s human nature to judge first and ask questions later. During a break at my chi gong class one night, I bent down to get a drink from a water fountain, and when I stood up, the young man in line behind me was visibly startled. He glanced down at the floor and then crossed to the other side of the gym to drink from a different water fountain. 

For most women, involuntary baldness is a painful experience. This isn’t about vanity; it’s about isolation, separation, and nonsensical cultural bias. My main problem wasn’t the abnormal situation on top of my head; it was the toxic assumptions in the heads of people around me. For me, baldness was the manifestation of the inward exile I’d felt as an awkwardly tall, utterly flat-chested, bisexual girl in a bitchily insular fundamentalist Christian high school. Now my true freak status was out there for all to see. And it was weirdly liberating. 

At the moment I was faced with my own mortality, baldness freed me to live in my own skin, finally accepting myself as I am because this is the only self available to me in this lifetime; I can either rock it or die trying to be someone else. I became addicted to the clean, comfortable feeling of baldness, because I liked the feeling of an unabridged me

My hair grew back after a couple years, but it still gets thin and patchy when I’m sick or stressed, so I’ve buzzed it off many times for practical reasons or just because I felt like it. People used to say how “brave” it was for me to be openly bald. And now they say how “brave” it is for me to not color my gray hair. The subtext of both these backhanded compliments is a reminder that I’m not the woman the world says I’m supposed to be. And I’m cool with that.


I’ve been praised for having a sense of humor about it all in my memoir Bald in the Land of Big Hair (HarperCollins 2001), but when late night comics held up Britney Spears shaving her head as evidence of her mental instability, I wasn’t laughing. And I didn’t laugh at Chris Rock’s “G.I. Jane” joke at the Oscars. It was a cheap laugh at the expense of Jada Pinkett Smith, who’s spoken openly about her alopecia. But more offensive than the joke itself was the response of Jada’s husband, Will Smith, who strode up to the stage and gave Chris Rock a swift slap upside the head. 

It was inexcusable that the show’s producers allowed Smith to remain in the theater. And then presented him with a prestigious award. And then let him blather on about “protecting” his wife, who strikes me as a person who's capable of defending herself. Frankly, his reaction showed how sensitive he is to her baldness, like it’s a handicap or a disease or a “we don’t talk about Bruno” type mortification to the family. 

When I was bald, my husband didn’t “protect” me by acting like a jackass or trying to take ownership of my pain. He stood up for me by shaving his own head in solidarity.

If you really want to support a woman who’s bald, respect her for having the courage to be herself. Show her you don’t fear contagion or distrust her sanity. And be grateful, because that beautiful bald head signals how welcome you are to be your own unique self when you’re around her.  

Peace and grooviness to all.
jr
 

Wednesday, September 18, 2013

#BloodCancerAwarenessMonth Q&A: "Is chemo brain a thing? And where the hell are my car keys?"

Over the years, I've received thousands of emails about Bald in the Land of Big Hair, a memoir about my experience with non-Hodgkin's lymphoma. A cancer diagnosis brings a firestorm of questions, and as a survivor, I can sympathize, but I'm not an expert; many times I just don't have the answers. So this year during Blood Cancer Awareness Month, I've asked Ashley Rodgers (Masters in Rehabilitation and Mental Health Counseling), to respond to some FAQs about the emotional and psychological aspects of the cancer journey. 

Q: Ever since chemo, I've been struggling with my memory and concentration. It's hard to read a book. I get lost on my way to the grocery store. Sometimes I can't even recite my own phone number! I've heard about "chemo brain" and post-traumatic issues, but my friends tell me it's just stress. What can I do to get my brain back?

Ashley says: The term “chemo brain” refers to mild cognitive impairment; this includes thought processing, concentration, multi-tasking, memory and other mental functions. It is a very real problem that people who have undergone cancer treatment experience. For some it only lasts for a short while, for others it can go on for years. There are several ways to cope with this issue on your own, with the help of your friends and family, and with your doctor(s).

On your own you can focus on healthy habits that support an active brain. Try to maintain a routine of a good night’s sleep, healthy foods including vegetables, and exercise. Your brain is part of your body, so creating a routine full of healthy habits can help give your brain the assistance it needs to combat the mental effects of the cancer treatment.

It can also be helpful to create a regular schedule. When your memory is affected it can be difficult to remember what you wanted to buy at the grocery store, that job interview next week, or the gifts your best friend wanted for his or her birthday this year. Utilize a daily planner, coordinate all your lists, appointments, and contact information all into one place. This is something you can take with you wherever you go and refer back to it whenever you need.

Sometimes chemo brain can make it difficult to multi-task and here is where your friends and family come in. Do not be afraid to ask for help. Your support system is there to support you. If you are trying to do too many things at once, ask someone to help take care of some of the things on your list for you. Take on things one at a time.

Whether these tips help manage the difficulties you are having or not, it is always a good idea to let your doctor(s) know what is happening. They may be able to adjust your treatment or their care relating to these symptoms. Often times, patients will wait to share this with their doctors until it has majorly impacted their day-to-day lives. Help prevent further complications in your everyday by taking action now.

For more information on anything and everything related to “Chemo Brain,” here's an article from the American Cancer Society.

We welcome your questions and comments.

*No part of this blog or the book Bald in the Land of Big Hair should be misconstrued as or substituted for medical advice.